| Apr. 27th, 2008 @ 01:04 am (no subject) |
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Current Mood:  bouncy
Hey everyone,
I know I have not posted in awhile, and I do apologize for that. I have been so busy with everything. I have been preparing for the CF walk that is happening here in Erie. I did the fundraising for the CF foundation last month.. I raised more than hoped! My hair was cut very short. Well couple weeks ago, I trimmed it a little shorter! I like it short. I look so much better. It's odd how something you fear, turns out to be awesome!
I have been getting closer to a lot of my friends! I am able to keep up with everything too! I have been walking all over the place! I can wrestle, and rough house! It is awesome! And this ice weather is setting in, or slowly thawing us out! I hear there is going to be snow next week.. But I don't think it will last very long.
Right now I am trying to raise my part of the $500 dollar goal for our team for the CF walk. I have $100 so far! But I am also busy trying to plan things out! I have some ideas, and I am going to pull last minute things off. My sis is trying to raise money. I just hope my bro has the time.
My mom can pull things off last minute, so I am not worried. I have a positive attitude about this! And I cannot wait to see everyone at the walk! I am happy I get to walk this year! :D
I feel so grateful I am still up and around. I am able to do a lot. And so I am trying to do stuff for the CF foundation! It's the best I can do! I will just inform, and try to help in the way I can.
I'll go on tv, or write books. I will get CF a little more known. Or at least, make an impact in one person's life. Kitty had always said she wanted to make an impact. She has no idea.
Fighting To Breathe is starting the major revamping process!!! You will notice the home page looks completely different!!
1) Content will be improved, and more available!
2) Forums!
3) The email has been updated!
4) I am personally being taught how to do more updates, so the site will have better updates, other than via this blog.
5) The links list will be getting longer! WE WANT EVERYONE LOOPED IN! CF will be slapped!
6) Support or others.. (via forums, links to other cf communities etc..)
7) Art Section Improvement! Pics, poetry, maybe things you've written? Music you've made? SHARE IT HERE! LET IT BE KNOWN!
8) IF YOU ARE WAITING FOR TRANSPLANT LET US KNOW! Because if you need help raising money, or if you are looking for emotional support, please get in touch here. Let us know..
9) Life Stories..
10) More blogs than just mine....
11) Sooo much more......
I am excited. It has taken awhile to get here. It was hard to get things done last year, due to my health being up and down, up and down.. All the time. And then a few of my friends passing away within the year. I also got diagnosed with chronic rejection, had major surgery (in which they almost lost me), and then my medport removed, new one put in, and then kidney stones dealt with.. And other scares..
I got through a fungal infection..
CMV flare up..
pnemonia
cold after cold...
MY SINUSES REARED THEIR UGLY HEAD!!!! (ow...)
I fought rejection on and off.. it is chronic (but i can live on..)
I have not had rejection since february!
Here is the link to my fundraising page for the CF walk that is happening here in Erie, on May 17th!
Soldiers Against CF!"
Great Strides
Saturday May 17th, 2008
Erie, PA
Presque Isle State Park, Cookhouse Pavilon
Check In: 11:00 am Walk 12:00 pm
I really hope that the weather is nice that day. It was nice last year, but a bit chilly. Only time will tell!!
Well I am off! Everyone take good care, I wish good health and peace.
PSSST! P.S.. I have a new icon pic up! OH YES IT IS CURRENT! |
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