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Sep. 5th, 2008 @ 03:26 am being a Markvoort
Current Location: home
Current Mood: blessed
i am blessed beyond boundaries.
to deal with such loss
sadness
grief
to be held together
supported
uplifted
to cry
sob
bellow
moan
to laugh
giggle
shriek
hiccup
to whisper
sigh
scream
chat
to never be alone
surrounded by those who are not only bound to love you
but choose to
shackled together by shared experience and values

we are loud
brash
honest
emotional

we party harder
we work harder
we love harder

we are markvoorts



my dad spoke at the memorial about why we are the way we are
so many people had been commenting about 'the markvoort clan' and how strong we are
my dad explained that there were two events that formed his family.

one- they are immigrants.
they moved here from holland when my dad was 8. my grandparents were alone with 5 young children and they didn't speak the language. they came from a small village in eastern holland where community was a way of life and values were instilled by the strict Church.
once in Canada they worked as a family to crawl out of poverty. each child responsible for helping bring money into the family at a very early age.

two -
by the time my dad was 24 (with 4 younger siblings...the youngest being only 14) both his parents had passed away of cancer. they were forced to grow up very fast and learn to look out for each other. there was still no money so they did what they had to to put all five of themselves through university.
my dad spoke to kim and peter (my cousins) from personal experience about losing a parent at that age. for some reason it really hit me at the memorial how hard that must have been for my dad and his siblings.

both my cousins spoke as well. they were elequent and brave, beautiful and touching. i can't imagine writing that speech. reflecting on the life of my father and what his life had taught me.

a crazy busy wine-filled week
i am proud and honoured and blessed to be a part of my family.
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[info]65redroses
Sep. 5th, 2008 @ 12:59 am Love for Lyndsay
here is the memorial facebook group for Lyndsay ([info]danforththefish), if anyone is interested in joining.

love for lyndsay
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[info]morelikeherself, posting in [info]cystic_fibrosis
Sep. 2nd, 2008 @ 09:52 pm (no subject)
Current Mood: sleepy
~tired flop~ I been busy, and am currently uploading DA with current WIP and a few finished pieces. Scanners taken a crap on me so its photos of the pieces (an projects)

Blegh.

Oh, Bell is officially rideable now. I rode her bareback. Silly broodmare.

~goes to keel over~ $60 of mare'n foal vitamins, $40 waterer=

Vitamens I got, INFESTED with bugs. ~so pissed~ an no they won't refund me,

waterer? Literally just asploded. An water, Everywhere. IT WAS EVERYWHERE. Soaking wet I was yes. Sweetys got her bucket/tub so she's okay for me to get the new one I got tonight on tommorow morning.
~NOW goes to keel over~
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[info]stormr_d
Sep. 1st, 2008 @ 11:44 am Writer's Block: The Expendable Sense(s)

If you had to give up one of your five senses, which could you live without?

Submitted by [info]newbiepoet


View other answers

Um well since I don't have a sense of smell...I'm not giving up anymore.

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[info]violentnitemare
Aug. 31st, 2008 @ 11:50 pm kiss the rain
Current Location: My Bed.
Current Mood: anxious
Current Music: the fan
This could possibly be my first post in here. But who really keeps count. My name is Brittany and I have CF. I am 18 years of age and was just going to ask anyone if they would like to be my friend.

I have not been on LJ in..feels like a lifetime. I am wanting to start fresh and new and was wondering if anyone would like to be my friend for the journey.

I am post 4 years transplant and any questions or any advice from people who has allready had trasplant would be great!

Thankzzzz!!!

--Britt.
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[info]broken_body, posting in [info]cystic_fibrosis
Aug. 31st, 2008 @ 09:35 am If you have CF and play WoW...
Current Mood: sleepy


I think it would aid us in trying to keep our lungs healthy. Although, I think I'd last like... 5 minutes at that speed, haha.

/random silliness
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[info]cosmicdust, posting in [info]cystic_fibrosis
Aug. 30th, 2008 @ 11:44 pm (no subject)
so who are you guys all voting for come election day? what are your hopes for a better healthcare system and which candidate do u think will provide?
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[info]freedomjewel, posting in [info]cystic_fibrosis
Aug. 30th, 2008 @ 05:23 pm Enlarging Veins?
Current Location: home
Current Mood: curious
So, today I had to get bloodwork done, which is always an ordeal because I have very tiny, very deep veins. Everyone has trouble, even when I'm in the hospital.

I heard somewhere that certain foods are good for "vascular health". Do any of you know what those foods are, and if they'd help make my veins bigger? Or do you do anything to make blood draws go easier?
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[info]amayasora2992, posting in [info]cystic_fibrosis
Aug. 29th, 2008 @ 04:34 pm (no subject)

I just wanted to let you all know that one of your community members, Lyndsay, passed away last week.  Lynds was not only a wonderful friend, but an absolutely amazing person.  Thank you to everyone in this community who was able to understand and support her in ways that her "real friends" may not have been able to. 

Rest in Peace Lynds 8/5/83 - 8/19/08

[Bad username: danforththefish     ]
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[info]laurysa, posting in [info]cystic_fibrosis
Aug. 29th, 2008 @ 04:22 pm (no subject)

I just wanted to let you all know that one of your community members, Lyndsay aka  

[info]danforththefish

 

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[info]laurysa, posting in [info]cystic_fibrosis
Aug. 26th, 2008 @ 02:15 am To my dear internet CF friends...
Current Mood: in mourning
Hey guys,

So i need to do a huge update on this very soon to explain all the exciting news that is going on but right now I am still in Ontario and my uncles visitation is all day tomorrow and the memorial is on wednesday so I'm a little busy with family stuff..


sorry....point is, i just recieved an a-mail from Nimisha and she needs some help from you guys. They are finishing the animation for the film and part of that is recreating my LJ page on the film screen. I don't own the rights to my own design (it's a free one that doesnt really represent me) so i think they are looking for someone to design one that fits the concept of the film that I will change mine over too. The help they need from you guys is that they will be showing my FRIENDS page and along with posts from meg and kina I want some posts showing of my other online friends. In order to make this they need HIGH resolution versions of your userpics.

If you would like to be in the film with your userpic please send a HIGH RESOLUTION version of it to my e-mail jaki232@yahoo.com Please also send your actual name, age and where you are from.
It will more likely be used if it is a photo of yourself with your name(loginname) in it or just a photo of yourself. Cannot be anything that is copyrighted or a photo of someone else. I will then send you a photo release form and you can fax it back the the production company.

I would LOVE LOVE LOVE my other awesome LJ friends to be in this film (the SUNDANCE application is coming up at the end of this month and we are trying to finish it in time!)

If we use your picture I will send you a free copy of the movie when it's done.

I would especially LOVE it if my longterm, true and true, loyal blue, super supportive CF-ers would do this for me.... (more specifically)..

cherylnilsson35

chris_stathers

daydee

fader_star

finding_her

glitterymascara

ladymysla

lotus82

orwellian_trash

violentnitemare

wander_lost


It would mean so much to me if you could send me a good high rez photo of yourself and be in the film with me. I'm not sure how many they need.

If I didn't mention you please feel free to also send it in, again I don't know how many you need and these are just the ones who have been around for a long time and who i KNOW have CF.

Love you all and it's for you that this is happening. The sooner the better as they will probably just take the first 10 best ones they get.

HUGS

and please help me in prayer that tomorrow will go smoothly for my family and that we can join as one to honour and love and pay homage to a wonderful man who lived with interest and passion and a wicked sense of humour. He will be greatly missed.


Photobucket
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[info]65redroses
Aug. 25th, 2008 @ 04:41 pm (no subject)
Current Mood: ecstatic
~devious~ I found where I can get my dad a christmas present~grin~ He is so hard to shop for no one has ANY idea >.>;

He'd mentioned awhile back how he'd wanted a train set again like when he'd been with my grandmother. He /loves/ trains. Heck last christmas I got him a collectors pocketwatch that the face cover that popped up was etched an old steam engine.

I was out walking, I'm trying to do that more to lose more weight, an walked by a store LITERALLY of just trains. Of every sort. They had train sets of every kind, even ones designed off of the polar express. Now I'm trying to remember what kind he'd wanted so since its so many months from christmas, I'm gunna ask just out oc 'curiosity' an see if its there an how much so my aluminum can savings can pay for it.

I have tons of cans saved already so another month plus I ain' to worried.

Also gotten pretty far with other people I've been getting for. Girl at the barns I got something, two other friends. Just..have to wrap 'em so when they visit they don't /see/ it. Since I let my friends wander my room at will. <.< >.>

But yeah my main worry had been finding something for my dad. An I now have a decent idea, just have to make it work. ~ponders~ Okay well 'm off to go do catboxes 'n ..stuff.~is melting, 100 outside an AC isnt' working~
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[info]stormr_d
Aug. 24th, 2008 @ 03:26 pm (no subject)
im reading a book about women's quarter life crisis and it is talking about body image etc.
i find that for me my view of my body is often more determined by my internal rather than external body.

i find my since this summer and having 2 lung collapses and surgery and now finding it harder to breathe, my life revolves around my lungs.
it makes me hate my body...how can i like my body when it doesnt even work right - when it doesnt do what it use to and what i wish it would do?

do any of you feel the same way? how do you deal with it?
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[info]ok5allegra, posting in [info]cystic_fibrosis